I'm not the only one...
90% increase in cases of childhood inflammatory bowel disease in ten years
Useful Information
Newly Diagnosed?

What are the symptoms of IBD?

 

Before the diagnosis of IBD is made you may have suffered with a variety of symptoms such as:

 

Tummy pain
Diarrhoea which may have had blood or mucus in it
Constipation
Loss of appetite
Mouth Ulcers
Weight loss and poor growth
Tiredness and lack of energy
The symptoms vary from person to person but once treatment has started these symptoms should improve within a few weeks.

 

Inflammatory Bowel Disease what is it?

 

Inflammatory Bowel Disease {ibd} is a term used to descibe ulcerative colitis (UC) and crohns disease (CD). Both of these conditions are caused by inflammation in the gastrointestinal tract (GI). An inflamed intestine is red, sore and often has ulcers present.
In many ways UC and CD are similar to each other; however they
differ in that in CD, the inflammation can occur anywhere from the mouth to the anus, however in UC only the large intestine (colon) is affected.

IBD can cause pain, diarrhoea, constipation, bleeding and other problems for children. some children have a lot of symptoms and may miss some school because of their illness.
Others have few problems with little or no interference in their lives.


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News & Events

May 19th 2016

Countdown is on…Gutsykids Ireland want you to #GetoffyourHoop for #WorldIBDDay2016 outside Dáil Éireann at 12.30pm

40 countries around the globe will light their landmarks in purple for #Unitedwestand2016 May 19th this year re-post to raise awareness.

May 19th 2015

Countdown is on…Gutsykids Ireland want you to #GetoffyourHoop for #WorldIBDDay

Dublin, Belfast, London, Cardiff, Glasgow and Portsmouth will all #GoPurple for #WorldIBDDay on May 19th this year re-post to raise awareness.

May 16th ISCC

Crohn’s Colitis Ireland Youth Network event on the 16th May. book your place soon, 40 places only…16+ www.iscc.ie

iscc poster

May 12th ISCC

The IBD Report Launch on the 12th of May 2015 at Buswells Hotel, Dublin. By invitation only.

May 8th & 15th

Gutsykids will have an information day at Our Lady’s Childrens Hospital Crumlin. come up say hello, have a chat, we’ll see you there.


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Useful Links

Do you want to meet other parents?   Submit a request on our ‘Contact Us page, we will try our best to put you in touch with someone else in the group who has a child of similar age and symptoms.

 

How do I contact Crumlin?  OLCHC Mary Hamzawi (CNS at Crumlin Hospital GI unit) has put a ‘one stop shop’ of infornation in this booklet download it and keep it close by…Introduction to the
Clinical Nurse Specialist (CNS) and the IBD Multi-disciplinary Team (MDT) CNS information leaflet

 

Click on a link below for more information…

•  The Irish Society for Colitis and Crohn’s Disease (ISCC)

•  The Centre for Colorectal Disease

•  CICRA UK IBD Kids/Teens support@cicra.org

•  European Federation of Crohn’s & Ulcerative Colitis Associations

•  Download the medical terms for IBD

•  Crohns Forum meet gutsy kids parents online

•  Crohns and Ulcerative Colitis Ireland

•  Irish Health.com

•  Irish Patient’s Association

•  Irish Society of Gastroenterology

•  Crumlin Children’s Hospital

•  www.ccfa.com

•  GI kids

•  www.hse.ie

•  Alternative diets and doctors

•  RTE news piece on IBD childhood disease


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